For research into
a book about the world of organ transplantation, I was granted unrestricted
access to the largest transplant center in the world. Day and
night, people literally on the edge of death arrived in ever-increasing
numbers for the opportunity to be considered for a rare heart, liver
or heart-lung transplant, including a little girl named Kellie Cochran
and her mother, Judy. Although Kellie has been dead now for more
than a decade, her image returns with unnerving clarity in my dreams.
I am sitting in
the hospital playroom watching Rashad, a little Arab boy, attached to
an intravenous unit like a puppy on a leash, blowing bubbles.
He can't go far, but he covers his ground with nervous quickness.
Soon, I turn my attention to Kellie, whose legs and arms are like twigs,
but whose blue eyes sparkle with fascination. Instinctively, she
reaches out to embrace the floating bubbles, which lazily evade her
tiny, awkward grasp. The nurse comes in with Kellie's many medicines,
loaded in narrow dispensers, and injects them one-by-one into her mouth.
Kellie accepts each with a glazed-over annoyance. Medicine is
nothing new for this little girl; medicine is something she has tolerated
from the very beginning of her short and painful life.
A shot of pink
drool suddenly spills from Kellie's mouth and rolls down her T shirt.
It is only noon, but this is the third outfit Kellie has ruined today.
Kellie is crying as Judy, a preppy-looking woman with reddened eyes
and disheveled blonde hair, slowly pushes herself up out of the chair
in which she has been momentarily dozing and begins to undress her.
This is what the little girl has wanted all along. Kellie's symptoms
are not as pronounced as some of the other patients suffering from liver
disease whom I have seen, but they are extraordinarily severe, nonetheless.
She has the brownish-yellow cast--jaundice--and the bloated belly caused
by the buildup of poisonous fluid and ammonia. Her arms and legs
are next to nothing in size; my forefinger is nearly as wide as her
wrist.
Kellie is two years
old. For more than a year, she has weighed fifteen pounds.
With her emaciated frame, I can't help thinking of concentration camp
victims. For the past few months she has been waiting in the hospital
for organs to materialize so that she can be transplanted. Her
life is in imminent jeopardy. When her clothes come off, Kellie
quiets down, and when Judy takes out the hairbrush, Kellie's eyes brighten
slightly. "This," says Judy,"is Kellie's favorite
toy."
Judy rubs the hairbrush
over Kellie's little body, and for the first time I see more than simple
signs of acceptance in Kellie's wondrous blue eyes. She is not
capable of much emotion, but there is a flicker of pleasure and relief,
at least momentarily. The incessant itching caused by liver disease
is the greatest torment; adult patients have described the itching as
unrelenting, radiating from the inside out. Kellie is not strong
enough to put up much of a struggle, but when Judy attempts to dress
her, Kellie begins to squirm and cry. Judy pauses to caress Kellie
with the brush once more and then to apply some lotion to the little
girl's arms and feet and hands. But every time she tries to put
on the little shirt and overalls, Kellie screams louder. It is
a slow, tedious process, but Judy knows what she is doing. If
only Kellie will give an inch, allow her shirt to be slipped over her
head, then Judy will scratch so that Kellie will relax, and Judy can
gain more headway. A sleeve, a leg, a button. Sooner or
later, Kellie is dressed.
Judy's life here
is simple enough--and terrible. She changes Kellie's clothes four
or five times a day, tries to snatch a couple of hours of fitful sleep.
She talks to the nurses and attempts to feed Kellie, begging and cajoling
her to eat. Before and after feeding, there is always bathing,
and then oil applied to her skin every few hours. And in-between
everything, there is scratching with the hairbrush, forever scratching.
Kellie also scratches on her own, digging desperately into her nose
and ears, raking her tiny fingers through her scalp and picking at her
feet. Two or three times a day, Judy lifts Kellie into the portable
stroller and wheels her around the corridors--until, invariably, Kellie
will spit up the food that has just been coaxed into her, forcing Judy
to return to re-change Kellie's outfit and give another soothing session
of therapeutic scratching. The rhythm is ongoing and relentless.
Judy and I don't
talk too much. After all, I am a writer--what some people refer
to as an "immersion journalist," involving myself in a subject
or situation as a fly on the wall, observing but not participating.
I am not supposed to allow my presence to affect the situation.
Mostly, I witness her struggle with her dying daughter with admiring
fascination. But once, when I am about to leave, I reach over
and touch Judy's shoulder long enough for her to know that I respect
her, and then I ask: "Is there anything I can get you?
Anything you need?"
As usual, she is
smiling, but her smile is now just a tight and twitching line across
her pale and desperate face. "A little bit of sanity?"
Her reply is posed as a question more than an answer, as if she were
questioning her worthiness of such a modest gift. I stare at her helplessly,
drawing my shoulders up tightly against my neck in a slow and nervous
shrug.
"Is that
too much to ask?"
"No,"
I reply. "I guess not."
My ongoing memories
of Kellie and Judy, and the decade of research I devoted to a hospital
setting with people seeking sanity under enormous and unrelenting stress,
helped me recognize and appreciate the ways in which strength of character
and instinct for survival suddenly emerge in the face of adversity--even
death. In many cases, people seem to became stronger and more
resolute in their determination to prevail as the situation grows more
pressured, dire and dangerous. By "prevail," I don't
mean to sustain life, necessarily, but more often to die with dignity
or to readjust to a philosophy which transcends frustrating irritations
and live life for the moment--sometimes with laughter.
Marjorie Gross,
whose New Yorker essay, "Cancer Becomes Me," appears
in this reader, provides five good points about being terminally ill,
including: "People don't ask you to help them move"
and "Everyone returns your phone calls immediately."
"You first learn about having cancer," Gross says, "when
the doctor walks in and gives you the sympathetic head tilt that right
away tells you, 'Don't buy in bulk.' " Gross was a lead writer
for "Seinfeld," who died soon after her essay was published.
Joan Mikulka Albert ("Counting on the Heart"), who is also
terminally ill, clutches desperately to her sanity by refusing to allow
the deterioration of her body to erode her spirit. "My body
is a mess," she told me. "I'm ill, and I look it. But
weirdly, the more damaged I am, the more fond of my body I become. .
."
Although this reader
is not generally about death and dying, all of the essays have a special,
sometimes subtle link to the search for or development of character.
I believe that character is a muscle with which we are all born--a tiny
button of flesh that must be flexed, strained, stretched on a regular
basis in order for it to self-lubricate and grow. Character is
a special muscle in that it is necessarily always taut, a rubber coil
ready to spring instinctively into action whenever and wherever required.
The unfortunate thing about the character muscle is that it is susceptible
to shock and can be overloaded. In other words, it can freeze
or lock the moment it is most needed or wanted. Unlocking the
character muscle is one of life's greatest challenges, especially if
it has been locked up for a long time. The writers and characters
in this creative nonfiction reader are often being tested; some
characters, such as the shop owners in Sandell Morse's "Canning
Jars" fail miserably. Others discover hidden strength and
admirable integrity, as did ten-year-old Natalie Kusz who somehow survives
a vicious attack by wild dogs deep in the Alaskan wilderness.
Writing books about
medicine and children, I have observed many kids like Kellie Cochran
and Natalie Kusz under great stress and have been amazed at how simple,
straightforward and courageous their responses are to pain, fear and
confusion and to a variety of unexpected physical and emotional challenges.
Certainly adults
can and will respond in such a direct manner, but more so when an enemy
or a challenge can be clearly determined and articulated. This
scenario is captured quite graphically in the excerpt from John McPhee's
paean to Alaska, Coming Into the Country, which details the incredible
journey of Leon Crane--a lone airman, survivor of a crash landing in
the middle of the tundra in the dead of winter. Crane, an engineer
in civilian life, with little experience in the wilderness, lived four
months on his own and eventually hiked back to civilization--a five-hundred-
mile trek. Robert McCrum faced an equally terrifying battle for
survival described in his essay, "My Old and New Lives," over
the course of a day and night in his own home, alone, when he, a healthy
man in his middle thirties, was suddenly, without warning, paralyzed--awake
and unable to move.
Leon Crane and
Robert McCrum were courageous and heroic; their ability to endure and
survive was tested and proven in rare and overwhelming circumstances.
Unfortunately, however, adult humans will often face more complicated,
less delineated crises to overcome. In "Three Spheres"
Lauren Slater returns to the psychiatric hospital in which she, only
a few years before, was a long-term patient. But now she is a
psychotherapist, assigned to treat a patient with a diagnosis similar
to her own. In "The Break" Cynthia Ozick seeks emotional
stability through psychic surgery by creating a daring metaphorical
procedure in which she separates herself from the negative aspects of
her past. Judy Ruiz's "The Mother, the Daughter, and the
Holy Horse," which also partially takes place in a psychiatric
setting, is a self-described "Trilogy" of incest, indignity
and self-destruction that poses an all-encompassing emotional test of
character of marathon proportions.
A marathon runner
will hit what is called the wall at approximately the twentieth mile
of a twenty-six mile race. That's when the real test of mettle
or character begins--or ends. Andre Dubus, who, while coming to
the aid of a stranded motorist, is crushed on a darkened highway by
a speeding car ("Lights of the Long Night"), hits the wall
at the beginning of the essay, the marathon struggle of his entire life--and
never stops struggling to prevail.
Survival needn't
be represented by the winning of a race or contest or by the denial
of death; a test of character measures an ability to prevail in the
face of all-consuming crisis and to deal with the often far-reaching
consequences of difficult circumstances. Kathy Dobie in "The
Only Girl in the Car" survives an eerie and inexplicable obsession
with adolescent promiscuity, but not the stinging memories of the indignities
of those years, which will forever haunt her. Dominique, the young
stripper in Lisa Hay's "immersion" essay, weakened by the
sobering brutality of an abusive relationship, is fighting with all
of her psychic strength to regain her confidence and emotional equilibrium.
It is no wonder
that the heroic mother of my transplant dreams, Judy Cochran, asks for
nothing less or nothing more than sanity, which can be the most steadfast
and enduring reward--all we can hope for and expect--in the face of
unrelenting trauma and suffering. In "Killing a Turtle"
Joel Agee captures the dramatic impact of this struggle to remain in
control of one's own emotional destiny as he describes a man in rural
Kentucky joyfully impaling a turtle, while he (Agee) and the man's daughter
are forced to watch. This incident occurred thirty years ago,
but Agee is haunted by the memory of the little girl, Emily, "whose
shoulders hunched up to her ears, her mouth open, the corners of her
lips pulled way down, her arms cramped to her sides, her fingers splayed.
. . If I were to paint a soul at the gate of hell, that is how I would
picture it; right on the threshold, looking down, with nothing to hold
her. . . But there is another figure in this tableau. It is me.
I am just looking. Everything in me has turned cold, and in that
coldness there is no pity, no pain, only the prayer for an end."
For writers, the
genre of creative nonfiction is ideal for such emotionally wrenching
scenarios; it demands a special, character-testing effort and challenge
and, in contrast to traditional nonfiction, it invites and encourages
the writer to become a character in the essay or article--to share emotions,
feelings, ideas and to contribute an intellectual and often subjective
substance to what can became a dangerously emotionless form. Thus,
from both a personal and a literary point of view, creative nonfiction
is the ultimate test of a writer's potential and range because it asks
so much more in content and technique than any other genre. In
addition to a writer's insight and reflection and in contrast to the
traditional newspaper journalist, creative nonfiction writers skillfully
employ literary techniques like scene-setting, dialogue, description,
point-of-view. The essays in this collection read like short stories--smooth,
fluent and powerful, structured with a tight action-oriented plot, fortified
with believable and often charismatic characters to which readers will
relate.
Of course, the
characters are believable and the readers relate because these people
are real--not a composite of a number of forms and faces. The
people joining John Edgar Wideman at the gates of Western Penitentiary
are the members of his family--the real names and faces of his mother,
wife and children united by the horrible circumstances of their private
reality in which a son, a favorite uncle, Wideman's younger brother,
is a convicted murderer, sentenced to life; this is also Wideman's
own personal search for sanity behind this gauntlet of gates and security
checks. Creative nonfiction is the literature of reality.
Poetry and fiction,
although believable and often seemingly very authentic, aren't expected
to be true. Creative nonfiction is not only true--at least from
the perception of the writer's experience--but also informational.
Wideman begins his family's journey with a description and detailed
history of the edifice in which his brother is incarcerated, while Reginald
Gibbons introduces us to the frightening, ironic reality of Juvenile
Court in Chicago a few days before Christmas. Of course, literary
truth, in contrast to factual truth, is perceived and re-created through
the lens of life experiences and the scars of frustration. In
"Fat," Carol Kloss sits in a shopping mall with her charcoal
and sketchbook, trying to catch in ten seconds the sling of a belly
over a belt or the wobbly scallop of body rolls. "The people
in the mall get nervous when they see me drawing them," she writes,
"but I don't think they know that on paper, they're not fat. .
.they're powerful, not flabby; fascinating, not shocking, more human
than any unpadded bones could ever be. Sometimes, I look
at my own fat and hope that one day someone will draw me."
Scott Murphy also draws his own self-portrait, reliving his life in
combat in Vietnam ( "Cold Sweat"), unable to distinguish between
the reality of his life and his visions of what he hoped might have
happened, which appear in vivid flashbacks in a string of soldier's
nightmares.
Annie Dillard's
remarkable "Expedition to the Pole" does not deny reality,
as much as it bends and manipulates the genre--and demonstrates its
great literary potential. Dillard, employing a parallel narrative,
confronts the Catholic church while surveying the history of the exploration
of the Arctic Circle, and the decline of the British empire. Throughout,
Dillard is daring. At one point, in a flight of fantasy, she blends
all of these diverse elements into one wild and brooding stew of ideas
and implications in the middle of an ice floe. Inexplicably, she
is wearing the uniform of a Keystone Kop.
Age is a theme
and a barrier that surfaces in many of these essays--and in the overall
revelation and resolution of strength and longevity of character.
Florence Epstein's essay begins with her birthday ( "Sixty")
and the recollection of her dream of writing the great American novel
in exile, in the tradition of Hemingway and Fitzgerald, and then returning
to the United States in triumph. Epstein fails at both endeavors
and suddenly, on her sixtieth birthday, finds herself stranded and nearly
destitute in Spain, living with uneducated peasants who do not talk
with her, understand her history or recognize her artistic motivations.
As a writer, she is a failure--and yet, as a human being, she has found
a way to survive; to preserve or to gain sanity which, in this context,
can be defined as an acceptance of and a comfort with the circumstances
of one's life, however disappointing.
Such is the essence
of creative nonfiction generally and the overall objective of the pieces
selected for this creative nonfiction reader, the first of many creative
nonfiction readers, specifically: To maximize literary potential
by telling a story about real people that embraces readers in a three
dimensional perspective, while providing writers the opportunity to
push the boundaries of life, literature, philosophy, history, science
and their own creative juices to the ultimate.
